I can feel innocence in the questions. The inqusitiveness in those eyes that ask me each time about my work, my well-being. I know this is way her mind works. The small joys of togetherness, of company, is exhibited through an excited innocence that lights up her eyes, her hands, her smile. She needs help to wander about the long and narrow paths in the old house. She is scared of being shut inside a closed, dark room even for a few minutes. She is not by any means frail. She is absolutely stubborn about not eating food and is intent on running around if anybody dare suggest that she should finish her food. She is opinionated about the bitter medicines she’s forced to gulp. Tears streaming down the petal soft face would make any person feeding her feel like monsters. And rightly so, in a way.
But don’t try sympathy all the way. She gives you prudent answers when you least expect it. You grin at her and she grins back with unmistakable but silent triumph. Those are trophy moments. There’s a conversation that has my parents and I in splits everytime we think about it.
My father had returned from Thailand recently and admired the famed Hanuman temples in the area. He was describing it’s beauty and the similarities between the Thai and Indian culture to her over the phone. She listened to in rapt attention and when the time was appropriate to comment, she said, “Yeah, both cultures are so similar” in a very dignified tone like only she can. That really shook us because it was so bittersweet.
When she’s upset, she breaks down into tears, unable to control the rivers of emotion nor the cause or the person that made her cry. She’s helpless, without external support, both, the physical and emotional. She wants to be independent, she wants to do her own things. She’ll want to help you, want to know why you are so upset, surely you’ll need her help, then you’ll be fine. She’ll want to arrange everything around the house to military precision safe and secure in it’s place. She’s tries everytime, but its so difficult to get a grip on things.
She’s helpless in the knowledge that she cannot control what’s happening around her, inside her and subtle changes in relationships. She can’t help being the way she is: helpless, emotionally vulnerable and dependent. And the worst thing is, she’s aware of it.
She’s 65, she has lead a fulfilling and complete life being a daughter, wife, mother to perfection. She now has only the memories and the experiences of the life that she lead to fall back on. In a way, the vulnerability is sweet. But then she has always been sweet to everyone.
The circle of life that starts with childhood (infancy), youth, middleage, oldage ends with childhood. The circle is completed with aid of the dreaded Alzheimer’s disease. It is the most common form of dementia. The symtoms range from forgetfulness to complete disconnect from the people and day-to-day activities happening around them. The clinical definition is much more colder than it actually is.
You react the way you would with a child. You keep the same patience, the same love that you would shower on a child. You have to let go of the thought that tells you that this is the same person who you looked upto a few years ago. That is the only way to reduce the torment on the person and on yourself. There is no other way. There is no miracle cure – no medicines, no surgery, no magic. Patience is truly a virtue.